Why can't I get anyone to just *listen* to me (Please read, I need serious help)?
Okay so, I’m going to give a little background info. here. It might be long but bear with me. I’ll try to be brief (dunno how successful I’ll be with it).
So two years ago I was diagnosed with Poly-Cystic Ovarian Syndrome, but they found no cyst, it was just that my testosterone level was much higher than it should have been, which somehow caused me to have several-month-long period cycles (which resulted in severe anemia and at the time my hemoglobin level dropped to 3.5) and then miss my period for 2-6 months. Also, I was diagnosed Von Willebrand’s disease which makes it difficult for my body to clot and stop bleeding (both for the menstrual cycle and for cuts and such). Anyway, after a bunch of bleeding episodes and stuff, here we are, two years after the diagnosis, I’d missed my period for about 4-5 months and they had to force it to start with oral contraceptives and progesterone pills. The birth control was supposed to stop the periods but it didn’t. I’m still bleeding and my hemoglobin lowered to 10.5 even though the doc prescribed a higher strength birth control, but that’s not even the big problem.
I’m already ninety pounds overweight, and used to be an emotional eater but for the past few months I’ve been trying to lose weight. I’m naturally active and am used to walking for hours at a time without breaking a sweat, and I take theatre classes on weekends and I dance for exercise every day for one to two hours, nonstop. Before, I could handle this kind of exercise with no problem, but now I feel like I can’t even walk up steps without being short-winded. That’s incredibly strange, even for me. Before I could walk from one end of the Atlantic City, NJ boardwalk to the other end and back and THEN walk all the way through the shop area and back to the Amtrak train station in the middle of a hot July afternoon and now I can’t even walk a few blocks from the train station to the hospital.
When I used to be an emotional eater, I was never really that hungry, but I just ate when I was upset. I’m used to eating healthy foods, and I’m a vegetarian, but my portion control is way off. Still, I don’t get as hungry as you would think. But as of last week, I keep feeling as if I haven’t eaten for days. Lately I’ve been trying to substitute extra meals for water or fruit, but it only makes me feel sick and cramp up a lot (especially since the water retention from the period already makes me bloated). The only thing that makes me feel full and not sick (for the short run) are bread substances and pretty much any grain (though I only eat flatbread, crackers, and hot or cold cereal).
I told my mom that something weird was going on. I had to go to the hospital on Monday because I woke up with blood running down my legs. They sent me home with the stronger pills after learning that my hemoglobin was only 10.5. When I take the pills, I start to bleed more and I feel incredibly sick. Everyone is convinced that my fatigue, hunger, and nausea is because I’m fat, and yes, that would be the normal case, but this isn’t normal for me! I feel completely out of it! I’m sleeping all the time, too. Today, for the first time, I actually slept until noon. NOON. I’m used to getting up at 6am every day to help get my sister ready for school! Why can’t anyone just listen to what I’m saying rather than basing their treatment on what what would be the "normal" situation? How can I get everyone to just shut up and listen instead of them trying to make me accept something that just IS NOT TRUE?
-sigh- I’m sorry, I failed at making this brief, but really, I’m just a little frightened and very frustrated. No one will take me seriously because I’m fat and they don’t believe that a fat person could be an active one. What am I to do?
Good point, I have been getting my blood sugar and insulin levels checked every month or so and so far those levels have been normal.
And the real thing is, I’ve gone through this before. Before I was first diagnosed, I had the symptoms of an anemic person. My family blamed it on my weight, and refused to get me treated, even when I kept getting dizzy spells and eating ice like a madman. Finally, when I collapsed on the train platform they thought to get me checked out and finally we found out about the PCOS. What shocks me now (but didn’t shock me then) was that the doctor said if I had been just a few hours late to the ER, I would have been dead–After being severely anemic for about a month and bleeding for six months.
It always has to resort to something serious before anyone believes me!

