Any help is appreciated!

Below is a copy of the document my mother sent to her Doctor. She is 80 years old and was making a plea for help to her provider of 20 plus years. She has lived with rheumatoid and osteoporosis for many years and tolerates pain well. Since mid November, the situation has added many other things. We cannot get questions answered out of any of the doctors involved and her life is not good. Any suggestions on what we should do? We are at a dead end and she cannot continue like this.

I would like to discuss some of my questions. I am not sure if an appointment is necessary or the questions could be answered on the phone. I have compiled a list of the recent events. Due to all the changing symptoms and different tests, I get nervous. I cannot immediately think of my questions, or details that might help the doctor, so they are listed at the end.

SYMPTOMS SINCE NOVEMBER 15, 2010
PAST

Pain lower back and running up from right knee up to the groin.

For several days, I experienced unusual bowel movements, sometimes explosive then constipation. I thought this might be stopping the morphine pills, but I do not actually know this for a fact.

When the leg pain stopped (not the lower back) extreme pain arrived horizontally across entire lower abdomen for the week.
After the vetebroplasty, I had relief of back pain, except left side.

CURRENT AND CONTINUAL

I am EXTREMELY weak and tired. During the past 8 weeks, I rarely leave my house. December 7th, I had stomach cramping and terrible heart burn.

I am not normal or functioning in any kind of usual way. I do not eat, and I feel nauseated constantly. Food has a nasty taste. In the above period of time, I have lost approximately 18 pounds. A few times, I have had an hour or two where I feel slightly better, but 98% of the time I just feel awful. Everything I do wears me out and I am short of breath.

I still have left side pain above the hip joint. This is reoccurring and can be intense. We discussed that we should worry about this later.

TESTS
11/14/2011
I had a routine appointment with Dr. Miniter. He did x-rays of the hip and knee right side.
11/19/2011
X-ray at 7th Street campus for extreme lower back and leg pain. I was told I had no broken bones or anything out of place and this was arthritis. I was given 2 morphine pain shots with no results.
11/21/2011
I received the MRI ordered by Dr. Miniter.

11/18/2011
I went to the ER west campus. A CAT scan revealed a cyst in right ovary, and hernia. The blood work did not indicate infection according to Dr Sowyers, ER physician.
12/5/2011
Appointment at the Pain Center in Moline. Dr. Wagle gave an injection in the back. No results.
Next, you found L1 compression fracture.
12/23/2011
Vetebroplasty at Trinity west. After the procedure another CAT scan.
12/28/2011
A visit to check eye pressure with Dr. Wayne. Due to problems with second eye, I have an appointment in IA City in February. Dr. Wayne has never experienced this sort of problem after 5 laser treatments in her office.
1/4/2012
Ultrasounds various views at Trinity east campus. I will schedule another ultrasound to check cyst in 6 weeks.
1/8/2012
Mailed this document to the Doctor.
1/12/2012
Doctor called back. I went next door and missed call. He left message stating he would call back.

1/18/2012
Still no call back. In the morning called office to remind him. That afternoon nurse called back and said he did not have any further need to talk to me. I asked her a about the cyst. She said we would see at the next 6 week ultrasound. End of conversation.

QUESTIONS
ABOUT THE CYST
Is this liquid or solid?

Do you have any indication this is cancer?

Do you feel any treatment will be required in the future?

ABOUT THE BLOOD CLOT
What indicated a possible blood clot?

Any symptoms I should watch for in the future?

Has this resolved itself or do we need to treat this?

GENERAL
Are any of my past or present symptoms related/typical of a blood clot, the ovarian cyst, or the hernia?

Are any of my current problems due to taking Fosimax for eight years?

Any other ideas on why all these symptoms are happening in this short period of time?

Will a pain patch, such as xylocaine (not sure of the spelling), help the reoccurring left side pain?

I need help to feel better. This is not easy and has lasted greater than 8 weeks. I feel something is very wrong.

Ever since my first cysts my body has been out of wacko. Hot flashes, cramping, cysts that burst and cause bleeding for days, fatigue. Would hormone treatments help me? Should I go see an Endocrinologist? I cant take birth control because it makes me sick.

I’m 21 years old, and I’ve had hyperthyroidism since I was 16. I’ve read that having hyperthyroidism increases your risk of ovarian cancer by 80%. my numbers are well-controlled, and I plan to have iodine treatment done on my thyroid either in March (over spring break) or during the summer.

To complicate matters, I am also a DES granddaughter, which I’ve read can increase your risk of ovarian cancer as well. I do have very mild spastic diplegic cerebral palsy and an atrial septal defect (corrected at age 6) as a result of the DES. I was also born 7 weeks premature. Other than that, I’m perfectly healthy and active.

I do tend to worry a lot, but I’m worrying even more so now that I know there is alibi between DES granddaughters and ovarian cancer, plus the fact that I have thyroid problems. Am I worrying too much about this? I go to my gynecologist every year for check ups and she always says I am totally fine. I just think I’m worrying more than I should be because I have IBS and mild heartburn/acid reflux that I was diagnosed with at age 17, and I know these symptoms can be quite similar to ovarian cancer.

Also, I should mention that other than having extreme difficulty getting pregnant, my mom and aunt (ages 56 and 55, respectively) are both healthy as well. My cousin has had occasional ovarian cysts, but she had no trouble getting pregnant (she actually got pregnant using 2 forms of birth control!) and is otherwise healthy.

There is no history of ovarian or breast cancer in my family.

My doctor has found a few cysts now , the pain interupts my daily life and they say the pill is the only treatment ? I do not agree with the use of birthcontrol and thats the only option they are giving me, I would really like a more natural approach. any suggestions greatly appreciated.

I had blood tests yesterday because i’ve been having pains in my lower left side, i always get trapped wind, but the only time i ever get this pains are a few days before my period, could this be an ovarian cyst? if it is most likely, what treatment do you have to have to remove them, if not what do you think it could be, i’m 16 and i’m so worried about it, it’s unreal. thank you xx

I had blood tests yesterday because i’ve been having pains in my lower left side, i always get trapped wind, but the only time i ever get this pains are a few days before my period, could this be an ovarian cyst? if it is most likely, what treatment do you have to have to remove them, if not what do you think it could be, i’m 16 and i’m so worried about it, it’s unreal. thank you xx

I started having pain in my upper right quadrant and lower right rib area about 2 1/2 months ago. It got to the point where I felt as if I had a tumor under my right rib. I went into the ER after being in unbearable pain one day, where the doctors ran tests to see if I had gall stones, hepatitis, or a mass on my liver. They ran ultrasounds and a pelvic, finding out that I had a 3.8 septated cyst on my right ovary, telling me to follow up with a gynecologist for possible hormone treatment in case I had PCOS. This was not my first ruptured, herniated cyst, so I figured I probably have PCOS. I recently went to the gynecologist, who didn’t take my insurance, saw me for about 5 minutes before deciding she was going to refer me to a surgeon who could do a laparoscopy to remove an "endometrioma". She just decided on this decision because of the amount of pain I am in. I would rather go about this by having no surgery whatsoever, and by being put on bioidentical hormones. Endometriomas go hand in hand with endometriosis, so I’m kind of worried about my options, as I am only 24 years old and want to have children.

My hormones have always been out of whack, as I went on the pill within the first two years of originally getting my period, since I was borderline anemic and had severe cramps, some acne, and lots of bleeding. After getting referred to a more natural way of fixing my hormones, I stopped the pill and started on bioidentical hormone treatment, which became expensive and I later stopped doing (since I had to drive far to the dr; they now have many in my area).

I was wondering if anyone has been in this situation before and what measures they took to correct this??? Thanks!!

Tonight the pain is severe! Not sure if the cyst has ruptured even more or has twisted or what. It feels as if I am getting stabbed repeatedly over and over in the diaphragm area, as welll as underneath the rib cage. My entire abdomen looks and feels extremely swollen . Ugh, so frustrating!

Ovarian Cyst causing a late period….?
I’m 22 and I’ve always had very regular period every 28 days right on the money. Well the week after my period I was suffering from alot of pain in my lower right side and went to the doctor that Thursday Oct. 14 and found out I had a "simple" ovarian cyst. My doctor thought the best treatment would be birth control pills. My last period started Oct. 1 and ending Oct. 5 and accroding to the way my cycle is I should have started Oct. 28 and it hasn’t yet. Is this normal? Should I go ahead and start the birth control pills now or wait till after for my period? According to the directions I’m suppose to wait till have my period then start takin the bcp? I have all the pain of a period but no bleeding am I pregnant or is this something the cyst is doin to my body?

is the only treatment for ovarian cysts a surgery?

What kind of treatment has anyone gotten for an extremely painful cyst and was is worth it? Please help me I have one and I want it gone I’m in so much pain I have to go to a pain clinic to manage it.
I appeciate the info given but I guess I’m looking for something that will leave my ovary right where it is. I don’t have any children yet and I know for sure that I want to have them. I know there are other alternatives but I would much rather try the natural way first.